Heather Lanier
Disability Advocate | 'Raising a Rare Girl' Author
About
Heather Lanier is a disability advocate and the author of the acclaimed book 'Raising a Rare Girl', which shares her journey parenting a child with a rare genetic condition. Drawing from her personal experiences, Lanier's powerful talks explore the societal barriers faced by those with disabilities and the transformative power of reframing disability as diversity. Her unique perspective inspires audiences to challenge assumptions and create a more inclusive world.
Talks1
"Good" and "bad" are incomplete stories we tell ourselves
Heather Lanier's daughter Fiona has Wolf-Hirschhorn syndrome, a genetic condition that results in developmental delays -- but that doesn't make her tragic, angelic or any of the other stereotypes about kids like her. In this talk about the beautiful, complicated, joyful and hard journey of raising a rare girl, Lanier questions our assumptions about what makes a life "good" or "bad," challenging us to stop fixating on solutions for whatever we deem not normal, and instead to take life as it comes.
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